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Tag Hystiocytosis

awareness-month, Blog

HLH can affect both children and adults

September is Histio awareness month!

Tamara Spencer
September 8, 2021

About Mason Spencer Lives On

Austin Spencer was diagnosed with XLP2 and HLH. His younger brother, Mason, was also diagnosed w XLP2. Austin required a bone marrow transplant to recover and Mason needed one to keep from getting HLH.

Austin is doing great but Mason succumbed to GVHD following his transplant and passed away on August 27, 2015.

This foundation was created in memory of Mason to bring awareness to HLH and XLP2 and to raise funds for research.

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